Helen's vision has continued to deteriorate in both eyes which is very sad for us all. The cause is a little uncertain but the visiting opthalmologist concurred that the nerves look abnormally white - as they would if the nerve fibres were dying. She has an MRI booked for Friday which will assess whether there are any brain lesions putting pressure on the nerves.
She had 3 days of IV steroid and 1 injection of B12 and apart from that we will wait and see. Today seems to be a day of a bit more trouble with word finding and conversation and she looks worried a lot of the time. Mental state does continue to fluctuate and all of us are adjusting to the changes in her vision and having to learn to communicate differently.
Louis' friend Susan arrived early on Monday morning for a 2 week visit from Melbourne. Susan and Louis have known each other since she used to live in Brisbane many years ago and she offered to come and give us a hand for a bit. Hopefully we can all tag team with Helen care and also the Darwin Festival and other activities.
The weekend just gone I went down to Sydney for a work meeting and stayed away 3 nights. Louis had returned from GARMA and did sterling duty on his own. There was a series of lovely visitors - Dianne and her Mum Doreen, Kaye, Camille x 2 and a great phone catchup with a long distance friend. Sunday night next week Helen's family - brother Robin (from Melbourne) and sister Jennifer and brother-in-law Ron (from New Zealand) will come to stay for a few days.
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