The weekend before last was surprisingly busy as Douglas and Carol both arrived from Melbourne and Louis was back from Brisbane. We all went out to a fancy dinner at Hanuman's on the Sunday night courtesy of Aunty Margaret and also managed a bit of time in the spa. On Monday Helen was exhausted - so much so that we cancelled her ophthalmology review for the time being. Tuesday she and Carol went out to visit Peter at Absolutely at Cullen Bay and otherwise we had a quiet day. Louis headed off to Alice for the Festival and Carol, Doug, Helen and I went to the Deckchair to watch/listen to "The Spy Who Loved Me" before Carol headed off on another midnight Tiger flight. Through the rest of the week we had a few nice visits from Diane and Shirley, Doug, Helen and I went to a cafe at Rapid Creek then lounged on the Nightcliff foreshore for a bit and on Friday we all went to Kaye's for lunch.
Saturday I headed off down South to do a locum leaving Doug and Helen in sole charge of each other (apart from Jed) until Louis returns next Wednesday. After my locum I plan to stop in Brisbane for a bit of a break so Louis and Helen will be on their own after Doug leaves on Thursday.
In herself Helen has been pretty stable - often tired, sometimes confused but taking joy in company. She has been listening to an audiobook called "People of the Book", some podcasts of the Book Show, poetry readings from various visitors and we still watch DVDs together sometimes. Her vision is stably bad which is why I don't think there's much to be hoped from the opthalmology review. Appetite and enjoyment of food are good. We have a plan to decrease steroids again soon - hopefully this won't adversely affect appetite etc.
Theoretically we are about to trial Iressa (a type of oral chemo targeted at her particular cancer) and then see the oncologist again on the 27th but I'm not 100% sure that this is happening. I think Louis and I are both a bit ambivalent about it.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment