Helen continues very well (especially compared to how she was 2 weeks ago). Louis and I are both in Darwin with her and tomorrow Louis' friend Emma arrives as well. We have been re-organising our home care arrangements and have a lovely woman called Jo looking after Helen on Mondays, Wednesdays and Thursdays. Louis has managed to finesse the frustrating funding system to better utilise our government $ - rather than half of it being sucked up by administration fees and suchlike.
We are also looking at both respite time and permanent placement options in nursing homes as well as continuing to try to offer good care at home. Unfortunately as the system goes you really have to do all things at once and to negotiate a massive amount of bureaucracy....seems a shame that we are finally getting the home supports worked out better just when this time may be ending.
Since I have been back Helen has enjoyed a few talking books from Vision Australia - including 44 Scotland St which she previously received as a book from Cousin Julie but didn't finish before she lost her vision. She also was able to listen in on a Book Group Discussion which is a monthly Telelink "interest group" organised via Vision Australia. They were discussing "Sold" which was a nasty-flavoured book about slavery which Helen didn't finish, but she says she found the discussion stimulating nonetheless.
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