Monday 18th July 2011

I have returned from my week away and Helen is noticeably not so good. A bit hard to say if it's just more striking as I've had the hiatus, or whether I have just struck a bad moment but she is sleepy, weak and not very communicative. She was happy to see me and she enjoyed the dinner Louis made tonight. Also was able to walk very slowly to and from the toilet but a lot of support and encouragement was needed and Susan reports that yesterday she semi-collapsed on the same walk as her legs were just too weak. Louis also said yesterday was a particularly bad day. It does make it difficult to know how to plan. We haven't had any results or feedback on the bloods from last week. She hasn't really had any significant pain. Unfortunately Susan has had a flare up of an old back injury so definitely won't be able to handle moving/catching Helen. Still Louis is here for a fortnight and as we know Helen is quite variable so we will have to wait and see what transpires.