Oh darn this internet - today is so slow I'll have to defer posting photos for another time. So...it's been a week or so since I posted. An "off" chemo week which meant no trip to the Mater but nonetheless a very full round of allied health professionals and medical visits. We have seen a physio, an optometrist, the domiciliary nurses x 3, the palliative care nurses x 2, the ACAT nurse case manager, the home health aids delivery man x 2 and the GP (just once!). In social events we went on a drive out to a leafy green suburb of Brisbane and had a marvellous morning tea-lunch extravaganza with Peta B and her delightful family and we went out for breakfast once at the Avid Reader - a bookshop in West End. My friend Kellie came to stay for a night as she needed a little care too and the internet was down at her house so that made for more social meal experiences for us all and allowed Louis and I to occasionally leave the house at the same time!
Helen has had some really positive times in the last few days including waking up the other day saying that she had felt really inspired in the night and felt that she would be much more able in the day to come. She wanted to thank all of you for staying with her during the times she has been really flat. On Sunday she had the social energy and presence of mind to make a few phone calls which was lovely. Having said that she still gets tired very easily and will happily sleep most of the day if not encouraged to wake up and do things. Probably partly from her daytime sleeping but also in some part due to her mental state Helen's sense of time is distorted and she often thinks things have happened twice or have gone on for a really long time even when this is not the case.
Life easily gets a bit monotonous - despite the stimulating whirl of allied health contacts - and I would urge Brisbane folk to continue to consider visiting and/or to take her on outings. Fodder for the mind and soul.
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